People with dementia are routinely deprived of t

first_imgPeople with dementia are “routinely” deprived of their human rights, facing forced medication, institutionalisation and a denial of care and support.A group of disabled campaigners with dementia spoke out this week as they launched a “ground-breaking” new booklet that highlights their battle for rights.Our Dementia, Our Rights aims to “bring together in one place the facts about some of the key rights relating to dementia in the UK”.Larry Gardiner (pictured), a spokesman for the Dementia Policy Think Tank (DPTT), which was set up in 2016 by a group of people with a diagnosis of dementia, launched the booklet at Disability Rights UK’s annual conference in north London.He said that people with dementia are “routinely” subjected to a denial of their human rights, with forced medication “absolute routine”, and the prescription of psychoactive drugs to “treat the presentation of our condition rather than recognising the underlying problem, which is that our brain cells are dying”.Gardiner said: “People with dementia are disproportionately affected by breaches of human rights.“One of the examples is the way legislation can be used to deprive us of a voice in determining what happens to us.“We have a degenerative condition that leads to death. We have a right to a life worth living before we die.”He added: “We find it very difficult to access any form of social care support.“When it becomes too expensive to support us, we go into a care home.“We get to live with people we don’t know, we don’t like and we don’t trust.”DPTT is a member of the Dementia Engagement and Empowerment Project , which brings together groups of people with dementia from across the UK, and is supported by Innovations in Dementia.Gardiner said: “The importance and significance of this booklet is it gives us an insight into how rights can be applied in practical, pragmatic ways.”He also spoke of the “particularly distinct and separate” difficulties of running a user-led organisation of people with dementia.He said: “We want to be a user-led organisation. What effects us is that the leadership burns out.“We need waves of leadership coming behind us. We need more support to help articulate our issues and needs strongly.”Professor Peter Mittler, another member of the think tank and the human rights adviser of Dementia Alliance International – whose members all have a diagnosis of dementia – said that 40 governments around the world had reported to the United Nations on how they believed they were implementing the UN Convention on the Rights of Persons with Disabilities (UNCRPD), but not one of them had discussed the rights of people with dementia.Many governments have launched dementia strategies, he added, but none of them reflects the UN convention.But he said it was a “triumph” that people with dementia were to have “substantial input” into the “shadow report” being prepared by Disability Rights UK and other disabled people’s organisations on the implementation of the convention in the UK.last_img read more

An MP has suggested the government was not tellin

first_imgAn MP has suggested the government was “not telling us the truth” when it promised last year to allow all disabled people to record their personal independence payment (PIP) face-to-face assessments.The claim came in a week in which the Department for Work and Pensions (DWP) accepted the latest in a long line of damaging court rulings on disability benefits; and received a warning from the work and pensions select committee that the application page for its new universal credit benefit system should “come with a health warning”.This week, DWP also finally began making backdated payments to disabled people with high support needs who lost out by hundreds of pounds a month when they moved onto universal credit. Work and pensions secretary Amber Rudd – who was later confirmed in her post by the new prime minister, Boris Johnson – was yesterday (Wednesday) giving evidence to the Commons work and pensions select committee.Labour committee member Neil Coyle suggested to her that DWP was “not telling us the truth” when – in its response to a report by the committee in April 2018 – it admitted the need to “build trust in the system” of PIP assessments, and said ministers therefore intended “to make recording the PIP assessment a standard part of the process”.Coyle said: “The commitment was to record by default all PIP assessments. That is not happening.”Rudd admitted yesterday (pictured): “It’s not happening at the moment,” before adding: “The evidence I’ve got is we are going to look at it again in the autumn.”Neil Couling, DWP’s director general for change, said the department had had to extend a pilot programme examining how recording would work because of the “very low demand” there had been for taping assessments, but would “report in the autumn on what we have found from claimants”.The committee’s report concluded last year that the disability benefit assessment system was being undermined by a “pervasive culture of mistrust”.It followed an investigation by Disability News Service that produced hundreds of accounts from PIP claimants who described the dishonesty of written assessment reports produced by healthcare professionals from DWP contractors Atos and Capita.Rudd did tell Coyle that she would consider his suggestion that DWP should reduce the number of routine benefit reassessments for people with progressive health conditions.She said: “I have been trying to reduce the amount of assessments that are taking place.“I’ve removed it for pensioners [she said in March that about 270,000 people receiving PIP who have reached pension age would no longer have their awards regularly reviewed], and we’ll look again at end of life assessments for people with terminal illnesses [she said earlier this month that DWP would review how the benefits system supports people nearing the end of their life and those with ‘severe conditions’].“So if the honourable gentleman wants me to take a look at progressive illnesses, I will do that as well privately and come back to him.”Two days earlier – just three days before MPs were due to begin their summer recess – Rudd had finally laid regulations before parliament that will allow disabled people who previously claimed the severe disability premium (SDP) to receive backpayments to compensate them for the lower rates of support they received after being moved onto universal credit when their circumstances changed.They will receive payments of up to £405 per month alongside their universal credit awards, with Rudd estimating that about 45,000 claimants will benefit from this package of support by 2024-25.Previous regulations also mean that claimants currently receiving SDP will not be moved onto universal credit if they have a change of circumstances. This will not change until 2021.The back payments were agreed by DWP after it lost a high court case in May, with the court ruling that the government’s arrangements for those who previously received SDP and moved onto universal credit before 16 January 2019 were unlawful.The new regulations will also allow a pilot project to begin in Harrogate to test how DWP moves claimants from legacy benefits such as employment and support allowance onto universal credit, through a process known as “managed migration”, the beginning of the final, lengthy stage of the delayed universal credit rollout.But there was criticism of Rudd by both Labour and SNP MPs after the government backed down on its previous promise that there would be a debate and a vote on the new regulations.Labour’s shadow work and pensions secretary Margaret Greenwood said this was an “absolute disgrace”.These developments followed yet another damaging court judgment on DWP’s disability benefits assessment system.Last Thursday, the Supreme Court ruled that more people with mental distress who have problems with social situations will now receive PIP.And it raises the likelihood of an eighth costly trawl through the records of disabled people unfairly deprived of benefits following years of serious errors by senior DWP civil servants, following seven others launched last year.On Tuesday this week, the disabled people’s minister, Justin Tomlinson, said he was unable to say how many more people with mental distress would now be entitled to more support.He said: “We must consider the detail of the judgment and how it needs to be implemented before we can estimate how many people will be affected, but we will look back at cases.” Also this week, a work and pensions committee report warned that none of the DWP staff working on the “baffling” universal credit were able to tell claimants if moving onto the new system would leave them better or worse off.The committee said benefit claimants were being trapped in the DWP “lobster pot”, “struggling with a sudden drop in income” while DWP refused to allow them to return to the “legacy benefits” they were previously claiming.The report said claimants forced to move onto universal credit through the so-called “natural migration” process were “in many cases seeing their income drop” and – because of the five-week wait for their first payment and the need to repay any advance payment they applied for – were facing the “impossible choice between hardship now or hardship later”. A note from the editor:Please consider making a voluntary financial contribution to support the work of DNS and allow it to continue producing independent, carefully-researched news stories that focus on the lives and rights of disabled people and their user-led organisations. Please do not contribute if you cannot afford to do so, and please note that DNS is not a charity. It is run and owned by disabled journalist John Pring and has been from its launch in April 2009. Thank you for anything you can do to support the work of DNS…last_img read more

The Labour Party launched a new equalities survey

first_imgThe Labour Party launched a new equalities survey today, with the aim of gathering information about the diversity of its half-million-strong membership.In an email sent to all Labour members, party general secretary Jennie Formby says: “Knowing more about our members’ ethnicity and disability will allow us to make sure the full diversity of our membership can be reflected within the party.”The survey explains that Labour’s democracy review, which was passed at conference in September, recommended the move in order to ensure better representation at every level of the party.It asks respondents about their ethnicity – whether they self-identify as Black, Asian or minority ethnic (BAME) – and whether they have a disability.“This data will help inform future rule changes and procedures to ensure BAME members and members with disabilities are properly represented,” the questionnaire reads. “It may also be used to run internal elections where positions are elected by just BAME or disabled members.” The new survey is understood to be designed to help create “radically reformed” structures for both disabled and BAME members, who would automatically become part of those structures via self-identification rather than active opt-in.For BAME Labour members, the review pledged to “undertake a mapping exercise of BAME communities” and compile evidence that would allow the party “to have reserved BAME seats on bodies such as CLP executives and LGCs with a higher percentage of reserved BAME seats in areas with high BAME population and under-representation”.There are no survey questions on LGBT identity. The Labour Party says that this is not an oversight, but instead a deliberate choice as it was made clear throughout the democracy review process that LGBT members did not want to be included in the measure.LGBT Labour has publicly posted about this decision, agreeing with the party that this was a conscious choice because there were concerns raised around safety. The group will remain the representative body, and not be replaced by a new structure with automatic membership.We’ve written a short note to address people’s concerns about @UKLabour‘s equalities questionnaire and the lack of questions of questions on sexual orientation or trans status. Please read it here ⬇️— LGBT Labour (@LGBTLabour) March 19, 2019 Tags:Labour /LGBT Labour /Equalities /democracy review /last_img read more

Homeless for the Holidays Whats Needed and Where to Deliver It

first_img 0% socksbaby wipessocksblanketsbatteriestoilet paperbody washjacketstentspropane (small green Coleman tanks) Share this: FacebookTwitterRedditemail,0% Though it is closed until Tuesday for the holidays, donations can be dropped off as of 12/27 at the Mission Neighborhood Resource Center at 165 Capp St. Please note, however, that no children’s items are accepted.Until then, if you want to donate directly to those who appeared in this video you can find them at:center_img If you, like many other San Franciscans, are wondering how to help the homeless over the holidays, there are many ways – but here’s what people need, in their own words. Cesar Chavez St. near Vermont St.Alameda and Treat Sts.Harrison St. between Alameda and 14th St.Trainor St. near 14th St.Here’s a list of the items mentioned in the video:last_img read more

City Honors Local Merchant for Service to Community

first_imgWomen’s Day came early for Eden Stein. On Tuesday, the curator and owner of Secession Art and Design was distinguished by the city with a total of six awards for her leadership in the burgeoning Mission Bernal Neighborhood.On Tuesday evening, after having returned from a day at City Hall, Stein stood inside her storefront at 3235 Mission St. at the cusp of the Mission and Bernal Heights, flipping through certificates signed by Mayor Ed Lee and California Congresswoman Nancy Pelosi.The honoree was particularly proud to have been recognized by Mission District Supervisor Hillary Ronen for “Trailblazing Women in Business and Labor.”“She’s operating a small business which is really hard to do, and operating a space to support and promote artists, which is another incredibly difficult thing to do in the expensive city that we live in,” said Ronen of Stein. 0% Stein said the women formed a friendship after a fire at 29th and Mission streets in June destroyed six businesses and displaced some 60 people from a residential hotel located virtually across the street from Stein’s gallery and just a block away from her home. “She was there in the parking lot Safeway working with the businesses, working with the residents, raising money and using her space at Secession to host community meetings,” said Ronen, referring to the hours after the blaze in which fire victims were tended to by Red Cross in the grocery store’s 30th Street parking lot.Without much thought, Stein took the lead, offering water to those who stood and watched helplessly as their businesses and homes burned.Stein asked the victims what they needed and discovered that a young couple with a baby had lost a stroller in the blaze. She told reporters on site to tweet to the community for donations.Her support didn’t stop when the fire was out. In the days that followed, Stein rallied local merchants to form the “Mission Bernal Merchants Fire Relief Fund” for those merchants who had lost their stores and livelihoods in the fire.  The effort raised a total of $20,000 to help them get on her feet.Stein said she reacted quickly because, having been displaced from another storefront in the Mission three years ago and with few commercial protections by the city, she knew that “its really, really hard for the merchants to get support and resources.” Because of her leadership, Stein became somewhat of a point-person in the neighborhood. “Every time I’ve had a question or an issue, my go-to person is Eden – not any of the dozens of city aides or politicians who handed me their business cards and offered help – because none of them do what Eden has done for our family and our business,” wrote Theresa Keane, of the 3300 Club, in a statement regarding Stein’s award. Stein said her efforts were fueled by a desire to see her community flourish. “This is where I work and live – my life is this little world.”Stein has long been involved in efforts aiming to support local artists and strengthen small businesses. At Secession, she curates bi-monthly art shows and gives space to local designers and artists to showcases and sell their work.She has also been active in rallying the city to amend a traffic control changes that have designated lanes solely for buses and taxis on Mission Street, which merchants say has hurt their businesses by deterring would-be customers.In an effort to draw shoppers to the street and encourage local business owners to connect with each other, Stein has also spearheaded the Mission Bernal Holiday Walk, now in its second year.The event, in which local bars, restaurants, galleries and shops offer special activities and entertainment to the community, is sponsored by the Bernal Mission Merchants Association, which Stein heads as president.The association grew from seven to 40 members under her leadership. Stein said that making a difference in the community is often as easy as “getting out and walking around.”“You have to just get out of your store, get out of your home, and really make it a point to walk and talk to people,” she said. “It takes a long time to build the trust.” Stein secured billboard space and advocated for placing a mural in the neighborhood last year –she hopes her next big project to be beautifying the now vacant lot left where Cole’s Hardware and the restaurant Playa Azul stood before the fire.“In a perfect world I would envision making that block artful … with banners, a facade in front of Playa  Azul that says ‘coming back soon,’” said Stein. “Just to give people some hope that something is coming back.” center_img Tags: Bernal Heights • community • Fires • mission • shopping Share this: FacebookTwitterRedditemail,0%last_img read more

THE latest edition of the In Touch Podcast is now

first_imgTHE latest edition of the In Touch Podcast is now available to download.The broadcast has a historical theme to it with our Heritage Round match against London on the horizon tonight.We look at the newly renamed Ty-Phoo Hall of Fame which houses some of the finest individuals ever to play our fine sport.Steve Prescott MBE and Apollo Perelini were inducted into the Hall this week at a special ceremony which featured so many Saints greats.We speak to ‘AP’, Honorary Life President Kel Coslett, Chairman Eamonn McManus, Ray French, Alex Murphy OBE and Paul Wellens.We also reflect on the win over Catalan, tonight’s match and the signing of Richard Beaumont.To listen click here or search for St Helens RFC on iTunes.Remember if you want a question answering on the Podcast drop us a line @saints1890 on Twitter or email podcast@saintsrlfc.comThe podcast is in association with Citytalk 105.9.last_img read more

First Team Match SAINTS TV

first_imgTwo early tries from Lachlan Coote and Lomax’s 100th Saints try put us in control before a further three tries from Theo Fages and a Tommy Makinson double capped off a dominant first half display. Makinson secured his hat-trick in the second half and Lomax added a second try as Saints bounced back to winning ways with a 38-2 victory with Coote picking up four assists on a day when Sean Long waved goodbye.On bouncing back with a win, Lomax said: “You just want to take it week to week that’s what we have spoken about as a group, we were looking for a reaction after last week and we got that.“The good thing about this team at the minute is that everyone puts the team first and that’s what we will continue to try and do and if we keep doing that hopefully we will keep getting the rewards for it.”Click below to watch the full interview, including his reaction to scoring his 100th Saints try.last_img read more

Feast Down East holds annual food conference at UNCW

first_imgWILMINGTON, NC (WWAY) — Feast Down East took over UNCW’s Burney Center Friday for its annual local food conference.Farmers, representatives from local supermarkets, community leaders, and more came together to exchange ideas about our local food system.- Advertisement – A couple of the hot topics were getting farmers the resources they need and making sure everyone in the community has access to local food.Executive Director Sarah Daniels says bringing all these different people together is crucial to southeastern North Carolina’s food system.“Food systems, everything from the seed that goes into the ground, all the way to how we deal with our waste and reducing food waste,” Daniels said. “We need to be doing this collaboratively and so there’s real energy around that momentum. Bringing people together always sparks and ignites that.”Related Article: Mom warns of ‘Dragon’s Breath’ snack after son rushed to hospitalLocal vendors who want to get involved with the conference next year can contact Feast Down East a few months in advance to become a sponsor or have a display at the community foods expo.last_img read more

Deputies Man sets woman home on fire children escape unharmed

first_imgNicholas Wallace TABOR CITY, NC (WWAY) — A Columbus County man is charged with three counts of attempted first degree murder after a fire over the weekend.The Columbus County Sheriff’s Office says Nicholas Alexander Wallace, 25, poured gas on a woman and on items inside a home in the 300 block of Dulah Road.- Advertisement – Investigators say Wallace then lit a match and threw it on the woman, igniting her and the room she was in. Two children who were also inside the home ran to a neighbor’s for help.EMS took the woman to the hospital, where she was treated and released.On top of the attempted murder charges, Wallace is also charged with arson.Related Article: Teen stabbed by classmate at South Carolina high schoolHe is currently being held at Columbus County Detention Center without bond.last_img read more

Memorial Day ceremony aboard Battleship NC cancelled

first_img Battleship Marketing Director Meaghan Holmes says the park where the tent is set up is now flooding, so for public safety, they don’t want anybody out if they don’t need to be.The ship is still open for tours.The Battleship is now operating on summer hours. It will be open from 8:00 a.m. until 8:00 p.m.Related Article: A blast from the past– Battleship North Carolina’s reunion is both sentimental and educational Battleship North Carolina (Photo: Helen Holt/WWAY) WILMINGTON, NC (WWAY) –The annual Memorial Day observance aboard the Battleship North Carolina has been cancelled due to the rain and flooding.It would have been the 57th annual observance since 1962. The ceremony is usually held on the deck, but because of the rain, they planned to hold it under a tent at Battleship Park.- Advertisement – last_img read more